Thrombosis Australia

Thrombosis Australia is a central information and resource hub for the community proudly brought to you by the Perth Blood Institute

            

                  

Our Thrombosis Australia Advisory Panel consists of seven eminent Australian healthcare professionals.

Thrombosis Australia Advisory Panel

If you are a healthcare professional you can access the Thrombosis Australia Professionals site here:

Thrombosis Australia Professionals

               

Pia experienced her first deep vein thrombosis (DVT) in April of 2016 when she was only 25 years old. The DVT occurred in the calf of her left leg, which she noticed due to severe pain and swelling, and at first, she thought it was simply a pulled muscle as she couldn’t put any weight on her leg.

Pia went to see her GP and confirmed that it was a DVT rather than a pulled muscle via an ultrasound. Upon diagnosis of the DVT, Pia contemplated about the cause and perhaps it was from the oral contraceptive pill. After having further tests while in hospital, they found she had a blood disorder called Antiphospholipid Antibody Syndrome (APS).

APS is a condition which occurs when the immune system mistakenly creates antibodies that make your blood more likely to clot. Antibodies are a type of protein which generally help defend the body against infections. With APS the body makes antibodies which incorrectly attack phospholipids which are a type of fat. Once these fat cells are damaged blood clots are likely to form in the arteries and veins.

Unfortunately, there is no cure for APS, although medications can reduce the risk of blood clots. Pia was put on an anticoagulant medication known as Warfarin. Warfarin is a demanding medication to take as the levels must be monitored to an exact amount to reduce risks associated with bleeding. Fortunately, Pia has been able to switch to a different anticoagulant, Xarelto, which is easier to manage. 

“Initially, it was challenging taking Warfarin because of regular blood tests and maintaining the right INR level. Also, certain foods had to be eaten in moderation which could affect the INR level.” Pia

Pia says that even though she was shocked at the original diagnosis, she is proud that she remained calm and listened to the medical advice. She is now more informed and aware of the risks of thrombosis and wishes that people recognised the symptoms and understand to take more precautions, especially when travelling, as thrombosis can happen to anyone.

“Don’t delay seeking medical attention, even if you’re unsure it’s thrombosis” Pia