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  1. Our impact
  2. Stories

Stories

PBI is honored to have had the opportunity to work with special patients and families and make a difference to their lives. Some of our patients have kindly agreed to share their personal stories. To read more about their journey, click on their story below.

John's story

John's story

“For the first time in over 50 years, I have had no bleeding issues – not even a bruise. Being able to participate in Perth Blood Institute’s clinical trial program has literally changed my life”. John was born in 1949 with severe Haemophilia A – a genetic deficiency in blood clotting Factor VIII. Read more

Published: 21st October, 2019

Updated: 19th June, 2020

Author:

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  • Stories
Thomas' Story

Thomas' Story

Following months of consultations with various medical practitioners, Thomas was diagnosed with a cancerous growth in his lower back. Following this diagnosis and the development of a treatment plan, Thomas commenced a program of therapy under the care of Haematologist Professor Ross Baker. Read more

Published: 23rd February, 2020

Updated: 10th June, 2020

Author: Rebecca Morgan

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  • Stories
Elie's Story

Elie's Story

When Elie was a young, fit and healthy 22-year-old he noticed a lump in the side of his neck. He went to his GP complaining of fatigue, insomnia, and severe itching. After being misdiagnosed with glandular fever and then a mystery virus, he received a call from his doctor. Read more

Published: 9th July, 2020

Updated: 10th July, 2020

Author: Jake Harfield

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  • Stories
George's Story

George's Story

For years George had known his white blood cell count was too high, but as it was just outside the normal range. After being referred to Professor Baker, George was diagnosed with chronic lymphocytic leukaemia (CLL). He joined a clinical trial in August 2015 and two years later, George was completely free of CLL and leading a normal lifestyle. Read more

Published: 20th October, 2020

Author: Rebecca Morgan

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Showing 10 of 4

Latest

  • Thrombosis Australia Advisory Panel

    We have established an advisory panel to provide oversight and direction to Thrombosis Australia, to ensure that the information we provide is current and accurate.

  • Thrombosis Australia is now live!

    Thrombosis Australia is now live!

    Australians are set to benefit from a central resource ‘hub’ of authoritative information to increase awareness and understanding of deep vein thrombosis, pulmonary embolism and stroke, and improve their prevention, early detection and management.

  • Breakthrough for haemophilia A patients

    Breakthrough for haemophilia A patients

    Perth Blood Institute has participated in a ground-breaking clinical trial which has uncovered a new life-changing treatment for people with haemophilia.

  • Darren's Story

    Darren's Story

    Darren suffered his first experience with blood clots on April 12th, 2015. Darren arrived at the hospital emergency department in a very bad way, even unable to speak. Read more about Darren's story.

Most read

  • Alicia's Story

    Alicia's Story

    Alicia was a very active and healthy 19-year-old when during a social game of netball, she rolled her ankle and was diagnosed with ligament damage. Learn more about Alicia's experience here.

  • Accessibility

  • COVID-19 and Thrombosis

    COVID-19 and Thrombosis

    The International Society of Thrombosis and Haemostasis has released information on COVID-19 and thrombosis. Here are the important facts; Having a blood clot does not increase your risk of acquiring COVID-19. Taking anticoagulants (blood-thinning medication) for a blood clot disorder also does not increase your risk of acquiring COVID-19.

  • Privacy Policy

    THE PERTH BLOOD INSTITUTE LIMITED ABN: 24164941815 (trading as Perth Blood Institute) takes your privacy seriously. We respect and uphold your right to privacy protection under the Australian Privacy Principles (APPs), by regulating the way in which we collect, use, disclose, hold and destroy your personal information. This Privacy Policy covers all personal information held by us.

  • Research Team Awarded DARF Dementia Grant

    Research Team Awarded DARF Dementia Grant

    Perth Blood Institute is pleased to announce it is the recipient of the Norma Beaconsfield Project Grant, awarded by the Dementia Australia Research Foundation (DARF). This grant will allow the Platelet Research Team to continue important investigations into the effect of blood-thinning medication on dementia risk.

  • Bridget's Story

    Bridget's Story

    When Bridget was 35, at 25 weeks gestation during her third pregnancy, she was diagnosed suddenly with a pulmonary embolism (PE) in her lungs. Read Bridget's story here.

  • Clinical Research Fellowship

    The Perth Blood Institute (PBI) conducts medical research into blood disorders, including their causes, prevention and treatment options; facilitates access to high quality clinical trials for people affected by blood disorders; and provides information about blood disorders to patients and their families.

  • Elie's Story

    Elie's Story

    When Elie was a young, fit and healthy 22-year-old he noticed a lump in the side of his neck. He went to his GP complaining of fatigue, insomnia, and severe itching. After being misdiagnosed with glandular fever and then a mystery virus, he received a call from his doctor.

  • COVID-19 - Impact on blood transfusions and blood donations

    COVID-19 - Impact on blood transfusions and blood donations

    Some members of the community may be concerned about the potential transmission of the COVID-19 virus through blood products, such as through blood transfusions. If you rely on blood products, you should feel confident to continue to receive them.

  • Terms and Conditions

Tag cloud

blood clots cancer chronic lymphocytic leukemia CLL contraceptive dementia haemophilia A leukemia Microangiopathic Thrombocytopenia multiple myeloma Non-Hodgkin Lymphoma pregnancy thrombosis Thrombotic Thrombocytopaenic Pupura Venous Thromboembolism VTE
Perth Blood Institute

Perth Blood Institute

Your donation can help PBI to fund vital translational research into blood disorders including thrombosis and haemophilia; support a clinical research investigation into the development of a new treatment or intervention; or help us develop educational programs to foster the next generation of career haematologists. Read more

Donate Fundraise

Published: 18th February, 2020

Updated: 4th May, 2020

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Contact

18 Prowse Street
West Perth
WA 6005
P : +61 8 9200 5300
F : +61 8 9200 5324
E : [email protected]

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PBI is registered as an Income Tax Exempt Charity
CFN: CC21886
ACN: 164 941 815
ABN: 24 164 941 815

© Perth Blood Institute 2020